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Contributing to Neuropathy research - Stuff That Works

Posted by runnergirl @runnergirl, Feb 13, 2022

For those in the US who might be interested, check out the Foundation for Peripheral Neuropathy advocacy section about writing a letter to your local senator, asking them to support more research for peripheral neuropathy. They provide a template to help guide you. https://www.foundationforpn.org/advocacy/ The section is at the bottom of the page, but here is the link to the template: https://www.foundationforpn.org/wp-content/uploads/2021/02/PN-Research-Advocacy-What-to-do-FY22.pdf

One other site that might be of interest is StuffThatWorks, a crowdsourcing web platform that organizes content into useful information. And, possibly more research in the future. https://www.stuffthatworks.health/

Interested in more discussions like this? Go to the Neuropathy Support Group.

runnergirl | @runnergirl | Feb 18, 2022

Oh, wow. That's a bummer! Sorry to hear that, @ajb

REPLY
ajb | @ajb | Feb 20, 2022
In reply to @johnbishop "Welcome @ajb, You mention the gabapentin helps you sleep good at night but you still have..." + (show)
@johnbishop

Welcome @ajb, You mention the gabapentin helps you sleep good at night but you still have itching. There is another discussion started by @artscaping that you might find helpful --- What do you do for Neuropathy itch?: https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/. In one of the posts in the discussion she mentions that she found a product that really helps. Here is a link to her post - https://connect.mayoclinic.org/comment/652324/

Have you been diagnosed with neuropathy or other condtions?

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Yes I have the Gabapentin should help it within the month it will help my itching I an a month

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