← Return to Recently diagnosed with Small Fiber Neuropathy - so many questions

Discussion

Recently diagnosed with Small Fiber Neuropathy - so many questions

Neuropathy | Last Active: Mar 8, 2022 | Replies (78)
Comment receiving replies
@julkun

Thanks Chris and the others in the chain. I don't have the luxury of thinking positive when I am in a severe pain period. I want to take some sort of action. Creams, lotions, vibrating devices, soaking my feet, exercising, stretching, extra-strength Tylenol, ice pack, heating pad, different shoes, etc. Nothing really works. I know why!!! The inflamed damaged nerves are sending pain signals to the brain. None of the above are attacking the source. This isn't eczema where you rub a cream on and it starts to itch less and eventually gets better. I know I will never be cured but I need to find out if there is a way to stop or really reduce the pain signal from the inflamed nerve from going to my brain. (Note: During covid the neuropathy pain was reduced by a lot. Maybe my pain receptors were too busy with the Covid pains, just a thought). Lastly, I am sick of reading about the NEW pill that stops neuropathy. They are all greedy liars trying to exploit us. (Curse word - LOL).

Jump to this post

Replies to "Thanks Chris and the others in the chain. I don't have the luxury of thinking positive..."
Chris Trout, Volunteer Mentor | @artscaping | Feb 21, 2022

Thanks for your "from the heart" reply. My private statement to myself is that my nerves are dying faster than I am. Remember that with SFN.....there aren't enough active nerves to send the appropriate messages. With the resulting confusion in the brain.......the signals that go back to the area are ones of pain.

I am quite concerned about your statement that you don't have the luxury of thinking positively when you are in severe pain. That is the exact time that you need to implement mindfulness practice. You may benefit from an introduction to @rwinney. She and I have shared several years of mutual support for each other. Rachel, at one time, was close to if not in the place that you appear to be right now. She has evolved to a place of control of her neuropathic pain as well as other conditions she lives with every day.

May you be safe, protected, and free from inner and outer harm.
Chris

VIEW AND REPLY