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Starting MAC treatment with "big three" drugs: What to expect?
MAC & Bronchiectasis | Last Active: May 8 5:56pm | Replies (192)Comment receiving replies
Sue, thank you for your comments and important information. The steroids and Levaquin are for the Bronchiectasis. I imagine if I go on the Big 3 he would take me off the Levaquin. I take Simponi (biologic) IV every 8 weeks for my RA. I don't think the lung biopsy did a colony count nor a sensitivity. He is not working with an infectious disease specialist. My pulmonologist says he has treated others and that they've done well. And no I didn't ask why I would have to take daily. Thanks for the information. I may try and go to Mayo in Jacksonville.
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Perhaps before you start over with another set of docs, it would be worthwhile to ask questions of the current one. Then you can decide whether to change. Some doctors and patients take a little time to settle into a comfortable relationship. You could let your doctor know you are a person who needs complete info, time to process, and then ask questions & get answers. If the doc seems unreceptive to that, it is time to change.
Do you feel the doc is receptive to asking for more details?
Sue