← Return to Starting MAC treatment with "big three" drugs: What to expect?

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@ritapearl

I follow your posts because you write from experience besides all your reading.So you have responded to me before.As a reminder I was diagnosed with Bronchiectasis and MAC 2015 due to a bleed. I delayed treatment of Big Three until 11/21.Terrible side effects and a fall led to discontinuance.I faithfully follow airway clearance neb 3% twice a day(got a bleed from7%.) Also do the Vest twice a day.I exercise daily. Working with my third pulmonologist.Also visited The CF center at Colombia Presbeterian.
So why this post, I am losing weight. I am looking for suggestions. I am not good at a few little meals a day.

Rita pearl

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Replies to "I follow your posts because you write from experience besides all your reading.So you have responded..."

How about trying this? Smoothies made from your choice of: fruits, veggies, yogurt or milk (or almond or soy or coconut milk) double scoop Protein powder ( I used orgain protein and greens) and peanut or cashew butter whirred in a blender. Drink 4-8 oz every hour. Favorites, in season or frozen, berries, banana, pineapple, Apple, carrots, avocados. I use a middle of the line Ninja blender. One pitcher lasts 2 days. Also, 1 oz meat or cheese cubes or Baby Bel cheeses, 1/4 c servings of favorite nuts. Chocolate protein powder in morning coffee with whole milk. Individual pizzas.
I nibbled from morning until night, ate like a bird at mealtimes. With all the coughing, eating very much at once was nauseating.
After I quit antibiotics it took 6 months to stop losing weight, another year to get close to where I was before. I'm now a perennial nibbler, able to maintain weight by adding a snack or prepared protein shake if I start losing again.

What have you tried so far?
Sue

Hi Rita, I’m about a month treatment with the standard 3 antibiotics. In addition infusion with Amikacin, I start feeling a bit better but the side effects are getting on me now, thanks God they are not that bad. We have to keep pushing, no choice at least for 3 months then you can search for other alternatives. Concerning the small meals is not for everyone, I have my 3 regular meals and in between some nutritious snacks.
God bless you and good luck. Carlos.