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Starting MAC treatment with "big three" drugs: What to expect?

MAC & Bronchiectasis | Last Active: May 8 5:56pm | Replies (192)
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@nancyefromva

Hi Sue, I started the Big 3 about 10 days ago and began having tinnitis after only a week of being on the meds... my ID said to stop taking all of the meds until I see my ENT next week. Just wondering what your experience has been with the tinnitis, did it start early after starting the meds and did it get worse with time or did the tinnitis stay about the same? I have a consult with Mayo next month so I'll see what they say as well...other than the ears I have had no issues with the meds

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Sue, Volunteer Mentor | @sueinmn | Feb 18, 2022

I have had tinnitus most of my life, maybe a little worse since the antibiotics, but hard to say. My vision and hearing were closely watched throughout the meds with annual followup now. Hearing loss seems to be progressing as expected for my age and history. Has anyone else had to stop the meds due to tinnitus?
Sue

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