← Return to New CT Scan shows MAI, Bronchietasis, Centrilobular Emphysema

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@sueinmn

Hi, I'm not sure what you mean about "coming with a survival rate"? True, MAC is usually not cured, but it sure can be both treated and managed, as many people in this group can confirm.

I know a lot of the published info sounds dire, but my ID doc assures me that one can live for a long time with Bronchiectasis and the recurring infections.

Treatment is no fun, but it got me back on track to travel, hang with my kids and grands, volunteer and pursue my hobbies. I do them all more slowly, but I plan to hang around for a long time...

I do agree though, that as we get older it's a good idea to cross-train and clean up our affairs. But to me, that is part of simplifying and decluttering my life and home to make life simpler.

I say all of this while feeling a bit fragile tonight because I lost my quirky, indestructible 94 year old cousin today - from a fall, not any of her assorted age related ills. I don't have details yet, but I bet she was hurrying because she was late for one of her many activities! I plan to be just like her.

Do you have any unanswered questions about MAC treatment?
Sue

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Replies to "Hi, I'm not sure what you mean about "coming with a survival rate"? True, MAC is..."

My mom lived from age 29 to 72 with bronchiectasis, having 2 main surgeries to remove parts of her infected lungs during that journey.

Sue,
Please accept my condolences regarding your cousin. It must have come as a shock.

Re: the "coming with a survival rate" comment: maybe I'm confused. I read in several places that MAC patients have a 75% chance of living 5 years or more. I also read a paper from a researcher who said that 27% of MAC patients died within 5 years. Granted, like any study, there could be flawed data. The ones I read were published within the last 5 years. I'm sorry that I didn't save the links. Any insights? I'm within my first month of diagnosis so this is all new to me. Thanks