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aarniek (@aarniek)

Protracted Benzo withdrawal

Depression & Anxiety | Last Active: Jun 14 9:24am | Replies (323)

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@ess77

@laurine7, @jakedduck1, and all…This is such an important issue and so often not directed well by physicians/medical staff.

My son, 53, was on Klonopin for a few years. He went to a new psychiatrist, zoom appt ONLY, and this doc increased the Klonopin, increased Seroquel, and then at one visit stopped refills on Klonopin. She may have decided he was a 'druggie' or something. I have no idea. He is NOT, but she may not have read his medical history! He is suffering from extreme pain 24/7, has PTSD from 20 years of agony and all that goes with it. She was completely negligent, should have her license revoked and she almost killed him.

He ended up a month+ later, on the kitchen floor having seizures, unconscious. After I found him, I called rescue and he was in the Mayo Hospital Florida for a week. On 5 IVs at one time, going full bore to save him, flush his system and calm his heart. He almost died. He almost died!!!!! Please read this and understand with what you are dealing.

Under NO circumstances should you, based on my experiences with my son, stop any of these types of meds nor taper them unsupervised. And extremely gradually. He had uncontrolled heart issues, which is not in his history, was extremely paranoid, had nightmares, and had inner voices telling him to do things….he is not schizophrenic. This was drug-induced.

He had to return to the hospital a couple of times, with the same symptoms, just not unconscious. It has taken a year of tapering with his new psychiatrist to get him almost back to where he was before stopping the Klonopin. He is gradually increasing Cymbalta and it is helping. No side effects. She increased the Seroquel at night for sleep assistance, as the pain wakes him every 4 hours otherwise. It's helping w/o apparent side effects. The last line of her text to me w/medication changes, I handle his drugs for him, at his request, as it can be hard for him to keep on top of the drugs and increases his anxiety level. The last line was: 'Little by little.

That's the important secret of this frightening medication. Little by little, extremely slowly taper off, with supervision and someone near to help if you get into difficulty. I almost lost my dear son due to the stopping of this drug by a medical person who should know better. I knew better and I have no medical degree. Little by little and don't give up. He is much improved in many ways, but adding the Cymbalta and other meds have helped.

Blessings as you figure this out. Your brain is in shock right now and must be treated properly to be well.
elizabeth

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Replies to "@laurine7, @jakedduck1, and all...This is such an important issue and so often not directed well by..."

@ess77
Hey there Lizzy,
Hope your improving by the day.
May I inquire why your son is taking Seroquel? Is it only for sleeping? If so, has has he tried other sleep preparations specifically designed for that purpose? Does he still hear the voices. Does he have RLS?

I am so sorry about your son. Unfortunately, I feel that to get off of Benzodiazepines you MUST have a Dr. Experienced with tapering. I went Cold Turkey after taking Lorazepam for over 10 years (very angry with the Dr. who prescribed them for so long) I was in terrible shape when I called my Primary Care Dr at 4:30 AM and got a prescription. I was then on 4 different medications to get through the withdrawal. I have been on Clonazepam for 8-1/2 months with a psychiatrist on ZOOM. She has made no plan for tapering and I just tapered myself. I am obsessed with researching about all the drugs I have been on to get off the one Benzodiazepine. I cannot stress enough to read, read, and read before making any decisions on the future of your son. You are your own best advocate. I know I will get better after looking back at where I was. That Dr. should be culpable for malpractice. Thank God I found Connect Mayo Clinic, it's been a WEALTH OF INFORMATION AND ADVICE.

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