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Kleine Levin syndrome

About Kids & Teens | Last Active: Jun 29, 2022 | Replies (18)

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@colleenyoung

Thanks for the update Jody. I wish there was a quick and simple solution. But you are not alone. I thought you might appreciate this website about another family living with KLS http://www.kleinelevinsyndrome.co.uk/index.html

I'm keeping my fingers crossed that the approval from your insurance happens quickly and without complications.

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Replies to "Thanks for the update Jody. I wish there was a quick and simple solution. But you..."

Hello all<br />
<br />
Don't give up hope as we still continue to have some of the same issues. You will need to do a lot of research and practice a lot of patience and pray fervently. <br />
<br />
It's not your fault and it's not his fault. It's embracing this and not letting it defeat you. Find joy when you can. As I said before I honestly believe all of these disorders are related and not any specific diagnosis is exact. It is getting more manageable with age. <br />
<br />
Blessings to you and your family. Don't give up hope! <br />
<br />
Brett Arsta<br />