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Mycophenolate for autonomic neuropathy?

Neuropathy | Last Active: Feb 16, 2022 | Replies (8)
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@runnergirl

@athenalee that's good to hear about this acquaintance of yours, in that the med might be beneficial. Although I have not been diagnosed with Sjögren's, I do have other autoimmune conditions.

Thanks for the Smart Patients referral - I'll check it out.

"...endless cycle of tests and no solutions." says it best. I just sent letters to both senators here in California regarding continued research for peripheral neuropathy. We all need to be squeaky wheels so we can find answers!

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Replies to "@athenalee that's good to hear about this acquaintance of yours, in that the med might be..."
athenalee | @athenalee | Feb 16, 2022

Definitely! “The squeaky wheel gets the grease” is one of my favorite mottos!

I’m actually slightly hopeful as my new insurance is allowing me to get coordinated care. My new rheumatologist I saw on Monday has done far more labs than the last pathetic rheumatologist. And, after having a sore throat for much of the past eight months I finally have a referral to an ENT. The rheumatologist is also coordinating with my transplant doctor and new neuromuscular doctor. He actually called me today to review the labs returned and tell me about the ones pending.

Keep in touch and let me know how you do in your search for healing!

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