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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Replies to "Peripheral neuropathy has started in both of my hands now and it’s very difficult to sleep..."
There are a lot of people doing research on how to live with neuropathy. You're "lucky". I have poly neuropathy and optic neuropathy. I'm burning from head to toe.
I am with you. Until I started to suffer from CIPN I knew nothing about Chemo Induced Peripheral neuropathy. My oncologist, my GP, & neurologist think I'm a bit of a nut. (only kidding) None of them know how to treat my pain or havoc it does to my day to day living. I am so lucky to be alive and everyday is truly a gift but last night at 2 AM I'm on the couch, heating pad, my Gabas (Gabapentin) & search a word. Its not a straight cancer problem, or a neurological one and all I can have are more tests. I'm up to 20mg of oxycodone3-4 x a day. I'm hoping maybe if enough people have complaints research & answers might follow. I mean when Eric Clapton says he has it in his hands & fingers Doctors might take notice. We are pain warriors and we fight the good fight.