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DiscussionProstate and Bladder Issues: What to do?
Men's Health | Last Active: Mar 8 12:51pm | Replies (163)Comment receiving replies
Hi. I have 2 or 3 posts relating my experience in a different but similar Mayo Connect thread called "Benign prostatic hyperplasia (BPH) Surgery Options". I had BipolEP (Bipolar Enucleation of the Prostate) done at the Mayo Clinic Rochester early in January 2022, so I thought I would update my experience since kayak461 seems to be in a very similar condition as I was.
Part I
Ok, some background on me. Like kayak, I am 69 years old and will be 70 in a couple of months. I have had known BPH for at least 20 years. All the doctors I have seen along the way always said, "Let me know when the symptoms get annoying enough and we will schedule you for surgery." The symptoms progress slowly and nobody ever really wants to have surgery, so we all accommodate and figure out strategies to deal with our issues and keep putting off the surgery until suddenly we can't empty our bladders. About 6 months ago, I started feeling like I was not emptying my bladder when I urinated. I live in a rural area and asked my general practitioner doctor for a referral to a urologist, which took several weeks to get. The day of my appointment, they told me to pee first and then immediately after, they did an ultrasound scan of my bladder to see if I had any Post Void Residual (PVR). The scan estimated that I was retaining 670ml of urine which surprised me at the time because I had no urgency or feeling that I needed to pee. The doctor told me that this is not good, that I was stretching out my bladder, backing up urine into my kidneys and that I needed to get this taken care of sooner rather than later. That was the first time any doctor had even suggested to me that now was the time to have surgery. He scheduled me for a follow up visit a couple of weeks later to do a cystoscopy... a tiny camera on a tube that they stick up your urethra and gives the doctor (and you) a real time view of what is going on inside your urinary track all the way up to and inside of your bladder. I have to say, I was apprehensive about having this done. But it wasn't nearly as bad as it sounds. I have had dental work done that was much more painful and took much longer. The cystoscopy took maybe 2 and a half minutes total. They use lidocaine to reduce some of the pain. The toughest part for me was when he pushed through my sphincter muscle which my doctor told me to expect as he was doing it, and it only lasted a few seconds. My prostate was quite enlarged and the urinary track through my prostate was fairly blocked so the doctor told me he was feeling quite a bit of resistance through there. But apparently there aren't many nerve endings inside the prostate because I didn't feel any "pain" as he went through there, just a general, slightly uncomfortable sensation that there was something in there. Once through the prostate, he then pushed the cystoscope up into my bladder. He was able to bend the camera around and view my bladder neck where the cystoscope had entered my bladder. That was when he saw that I had a large median lobe of prostate material protruding into my bladder. It looked to be about the size of a walnut and you could tell that if the cystoscope had not been there, the median lobe would have been directly over my bladder outlet acting as a ball valve and blocking the flow of urine out of my bladder. The doctor was watching all of this on a large monitor that he positioned so I could also see it and narrating what he was seeing in real time. I asked before hand if he would be recording it and he said he was not able to record it, but suggested that I could record it with my cell phone if I wanted to. So I did and I was surprised how well the recording came out. It was very helpful to have that recording when I later got second opinions and searched for a surgeon who could do HoLEP or BipolEP. As the saying goes, "one picture paints a thousand words". It was a real "ah ha!" moment for me... the moment I saw the median lobe on the monitor. I knew that I needed to have surgery to correct this issue. So men, if you are having serious issues trying to pee, as they say in all of the drug commercials... "ask your doctor if a cystoscope is right for you", haha. It really is the most definitive way for your doctor (and you) to see what is really going on inside of you. I also had a TRUS (TransRectalUltraSound) done during that appointment. It is a more accurate way to measure the size of your prostate, more accurate than a digital rectal exam. The TRUS estimated my prostate size at 90ml. I've noticed that some prostate size reports will use "ml" while others use "cc" or "grams". I am not sure, but I think all of those units of measurement are interchangeable.
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How’s your recovery going? Are you having any issues at all following the procedure? We’re you in and out on the same day?
Part 2
The urologist who did the cystoscopy only does traditional TURP surgery, so I got a referral to a large university hospital's urology department hoping they would be able to perform HoLEP or Rezum. On my first visit to the university, I was in extreme bladder retention with a PVR of over 1,000ml and I ended up leaving that appointment with a foley catheter installed. Not fun! Unfortunately I also learned that they do not have the equipment to do either HoLEP or Rezum and the doctor I was dealing with did not know of anyone in my area who does. The university urologist wanted to schedule me for a robotic simple prostatectomy which entails making 4 incisions in the outer abdomen wall and then cutting into the bladder in order to robotically remove the median lobe in my bladder and then continuing down through the bladder outlet into my prostate to hollow it out. Obviously that is a much more invasive surgery than HoLEP or BipolEP. So I asked if I could continue to search for another urologist who does HoLEP or something less invasive and he said "of course". I found a doctor who does HoLEP, but his earliest appointment for a first visit was in February 2022 with surgeries scheduled out 6 weeks later, which puts me out to late March approaching April. My GP doctor does not recommend being on a foley catheter long term while I wait to see other urologists and I personally wanted to get off the catheter as soon as possible, but I was not interested in having a surgery that cut through my abdomen wall when there are transurethral procedures that can be done much less invasively. So I circled back to the Mayo Clinic and called the urology department and ask simply, "how soon could you schedule me for HoLEP surgery?" The person I spoke with was excellent (like everyone at the Mayo Clinic). She said she would check into it and someone would call me. I got a call from a urology resident doctor the next day who confirmed details of my situation with me and gave me some additional information. This doctor told me that Mayo Clinic had moved their HoLEP equipment from Rochester to a satellite hospital in Mankato and replaced it with BipolEP equipment. The resident doctor said she would find out when I could be scheduled for either HoLEP or BipolEP and someone would call me again. It is my understanding that HoLEP and BipolEP are similar in that they both use a high temperature cutting tool that cauterizes as it cuts and therefore reduces the risk of bleeding. HoLEP uses a holmium laser while BiPEP uses electricity to achieve the high temp, at least that is my understanding of it. (I am NOT a doctor!) The next evening I got a call from a Mayo Clinic urology surgeon. After again verifying some of the details of my situation, he told me he had an opening for BipolEP surgery in Rochester, MN on January 5, 2022. I told him to sign me up! He said he would and that his staff would set up a video teleconference call for us a few days later, which we did. In that video call I was able to show the surgeon the video I recorded of my cystoscopy which he said he could see clearly.