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Mycophenolate for autonomic neuropathy?

Neuropathy | Last Active: Feb 16, 2022 | Replies (8)
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@athenalee

I’m sorry Rituximab didn’t work for you. An acquaintance I know with Sjogren’s and a couple of other autoimmune diseases has had great success with the infusions and her PN went away. Mycophenolate might be worth a try, especially at a low dose. There are a number of journal articles referencing it for autoimmune diseases. Unfortunately, there’s just not much out there to control autoimmune diseases and PN.

There’s another patient discussion, mostly Sjogren’s and other rheumatoid related diseases, called Smart Patients. If you haven’t been on it, you might pose your question there as well.

Best wishes. I’d be interested in learning if you discover something that works for you. I feel like I’m stuck too, just an endless cycle of tests and no solutions.

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Replies to "I’m sorry Rituximab didn’t work for you. An acquaintance I know with Sjogren’s and a couple..."
runnergirl | @runnergirl | Feb 16, 2022

@athenalee that's good to hear about this acquaintance of yours, in that the med might be beneficial. Although I have not been diagnosed with Sjögren's, I do have other autoimmune conditions.

Thanks for the Smart Patients referral - I'll check it out.

"...endless cycle of tests and no solutions." says it best. I just sent letters to both senators here in California regarding continued research for peripheral neuropathy. We all need to be squeaky wheels so we can find answers!

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