I’ve had pulmonary sarcoidosis, MS and 3 others on and off since the 70.s, plus a few regular diagnoses thrown in for excitement and at the risk of sounding simplistic, seems everything said in the last couple of days is on target with me, great to hear. .. thank you everyone. My input..just need to b ‘’anal’’ about everything, stay healthy, away from sick people, respiratory diseases, much like we’re all doing with covid, because lungs are vulnerable, get any preventative offered, like Prevnar 13, MY miracle drug ...best thing I ever did.I haven’t had one episode of pneumonia in 6 years! use all energy conservation techniques and manage fatigue, but never b over tired, the more exercise the better, always self-pacing, never giving in, doing the best and most I can every day. Only excellent, supportive docs, only one ‘’oops’’event is ever allowed and do not be afraid to point out unacceptable behavior like a lab tech without gloves.
@shani Wow, Wow, I love your attitude!! I have a different autoimmune disease and fatigue seems to follow me everywhere. Ive been getting exercise but I think I need to get more. What do you do on days when you’re just too tired?