@susanna82 Congratulations on regressing your CKD level back to Stage 2! I certainly agree that each patient has to be their own advocate! Since 1988 when diagnosed with Systemic Lupus, my interfacing with doctors and medical team has been lovingly described as "engaged". Some called me a difficult patient. But being actively involved in my own health has stood me in good stead.

We each make our decision how best to handle our health issues, and interact with specialists. By being proactive, educating myself, and making dietary/activity changes, I was able to slow the progression of my rare kidney disease. First signs of CKD were back in 2005, and by 2008 a renal diet was in place, even though, like you, I was told that wasn't necessary. Over the years the diet plan was modified, and in 2015 was the formal diagnosis of the rare disease, previously attributed to my lupus! Do I miss some of my favorite foods? Oh! you bet! It's not easy to buck the tide of professionals who would like you to continue on as normal.

The kidneys are a wondrous organ, and do so much for our bodies. Often I liken our bodies to a balancing act, and how we each need to watch how to keep things on as even a keel as possible. There are many parts to the puzzle and misplacing one piece can wreak havoc!

@nimalw @csage1010 What are your thoughts?
Ginger