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Talking Frankly about Living with Advanced Cancer
Cancer | Last Active: Jun 18, 2023 | Replies (508)Comment receiving replies
My recommendation? Step away from Dr. Google, @dutchman09 🙂
I might suggest (only if you want a suggestion) focusing your time writing down your questions and organizing them for your appointment tomorrow to get the most out of your time with your oncologist. Once you've written them down, put the paper aside and try to calm the never-ending loop of "what ifs" and questions that are whirling in your head. Easier said than done, I know. But writing them down can help.
Just know that we're ready to listen when (if) you're ready to talk about your prognosis and what you learn. Wishing a good night's sleep tonight.
Replies to "My recommendation? Step away from Dr. Google, @dutchman09 :-) I might suggest (only if you want..."
I am very glad yesterday is over! I didn't really expect much to come from this doctor meeting but after all was said and done it worked out for the best. He read my print out on the effects of Chemo on Peripheral Nephropathy and my thoughts on radiation and then finally suggested (after a simulated 'strip search' while dictating to his Scribe) Hormonal Therapy in the form of an injection of Eligard, leuprolide acetate, every three months with a prescription of Bicalutamide to help with the hot flashes. He also did lab work to measure my Testosterone which to the best of my knowledge had never been performed on me. So in three months I will walk in his office with fingers crossed to see what has developed. I did ask him why in November my PSA was 7.6 and in January was 2.83 and his only response was "One of them was a lie"! Knowing the circumstances I can guess which one.
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Your absolutely right about dumping Dr. Google! I do have a small list of questions but after the hassle of the last three months I really don't have any faith that this appointment is going to go anywhere. I do want to thank you for the good night sleep wishes. I think I've got one of the best reason's in the world to just want to stay in bed tomorrow. I live in rural Arizona and it's an hour plus drive to the office that I've never been to.