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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@johnbishop

Welcome @tillysam, Sorry to hear you joined the GCA club. I can imagine that going down from 80 mg prednisone to 15 mg was not that easy, especially given you did it in 18 months. Took me 3 and half years to get off of 20 mg starting dose the first around with PMR. Are you completely off of prednisone and on hydrocortisone now? Do you mind sharing how your tapering down is going?

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Replies to "Welcome @tillysam, Sorry to hear you joined the GCA club. I can imagine that going down..."
marda | @marda | Feb 14, 2022

Wondering if anyone has been put on Methotrexate for treating PMR while tapering off prednisone and if so, how did it go?

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tillysam | @tillysam | Feb 14, 2022

So, when I was on Prednisone I went on Methotrexate and then Actemra. I could not tolerate either one. Two weeks ago, I was switched from Prednisone to Hydrocortisone. I started at 20 mg in the AM and 10 in the PM. I felt awful and so the endocrinologist upped the dose to 25 in the AM and 15 in the PM. Again, I was miserable with night sweats, pains in my arms, shoulders and neck, plus headaches and extreme exhaustion. Today my doctor upped the medication to 30mg in the AM and 15 mg in the PM. My endocrinologist said that things would be brutal. He was right!

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