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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@tillysam

Your symptoms,etc. sound just like what I have been through. I started out at 80 mg. about 18 months ago and finally made it to 15 mg. My endocrinologist decided to get me off of Prednisone and go on Hydrocortisone. It’s been brutal.

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Replies to "Your symptoms,etc. sound just like what I have been through. I started out at 80 mg...."
John, Volunteer Mentor | @johnbishop | Feb 14, 2022

Welcome @tillysam, Sorry to hear you joined the GCA club. I can imagine that going down from 80 mg prednisone to 15 mg was not that easy, especially given you did it in 18 months. Took me 3 and half years to get off of 20 mg starting dose the first around with PMR. Are you completely off of prednisone and on hydrocortisone now? Do you mind sharing how your tapering down is going?

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