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Prostate and Bladder Issues: What to do?

Men's Health | Last Active: Mar 8 12:51pm | Replies (163)

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@rfherald

Thank you Paul! Thanks especially for the detail that you experienced not seen in doctors' explanations.
I would like to see others experiences - good and bad - of the various treatments for BPH. We need to be informed with the knowledge necessary when asking questions of our Urologist.

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Replies to "Thank you Paul! Thanks especially for the detail that you experienced not seen in doctors' explanations...."

I'll briefly describe my with experience with HoLEP and then make a general observation.
First, I am 80 years old. Summer of 2021 I had several episodes of 'acute urinary retention,' relieved by going to Emergency and getting a Foley catheter. My local urologist briefly gave me the menu of options, tilted the scale toward TURP, (which he does) and said he could see me again in nine weeks. I had another episode of acute urinary retention within days. He didn't see me; I went to Emergency for a Foley catheter. I did some online reading on treatments. I also sought a second opinion from the Mayo Clinic, Rochester. There I saw somone for over an hour to discuss various treatments. I decided to try the 'least invasive' path—tamsulosin (which I was already taking) and dutasteride—for six months and if my symptoms weren't better seek Rezum. After a week or so I could urinate less and less and I sought a visit with a Mayo surgeon who does Rezum. There was a period of 4-6 weeks when I had a very painful penis and couldn't sleep because of small, painful urinations ~ every half hour/day. Of the three docs I consulted during this period (my local family doc, my local urologist, the Mayo guy I had met earlier), the Mayo guy was the most helpful. It was all done via email. We had many back and forths. He prescribed what helped me the most. Just before my visit with a Mayo surgeon who does Rezum, Mayo had me do several tests from which it was seen that I was not a candidate for Rezum—135 g prostate, 'advanced' blockage. HoLEP seemed like a likely procedure. I got an appointment with the Mayo (Minnesota) surgeon who does those.

I I had the procedure Friday, November 12. No pain. In at 9 am, out at 4 pm. I had a Foley catheter over the weekend. Monday the catheter was removed. Great urine stream. I was not to lift heavy objects nor ride a bike nor engage in sexual intercourse for six weeks (maybe resumption of sexual intercouse could come sooner than six weeks—don't remember). Other than that life was normal.

There was some incontinence at the beginning of recovery, for which I used ~ 4 Depends/day. It is now three months since surgery. I can voluntarily control releasing a urine stream, but I do leak urine between times of release. I adjust to that with folded toilet paper issue, which I discard and replace a number of times/day. This trick allows me to use only one Depends/day now. I believe Mayo's guidance is that incontinence usually diminishes over time.

Erection and ejaculation are as another HoLEP patient as described—satisfactory.

In sum my HoLEP experience has been entirely positve.

Second, a general observation: do not tell your surgeon what procedure to use. Are you the expert and s/he the mindless workman? In my online research I found surgeons with great credentials strongly recommending a range of procedures. I really didn't have a basis for choosing one. However, I read many times that TURP used to be the gold standard, but...I also read that it takes quite a while to learn how to HoLEP. That presumably explains why there are relatively few surgeons who do it. My local urologist does not do HoLEP; and he didn't see me in a timely way after my first episode of acute urinary retention. So I lost a degree of trust in his words. On the other hand Mayo saw me in a timely manner, gave me lots of email consultation, frankly said they (at least the guy I was working with) 'didn't believe' in one of the new procedures. The Mayo surgeon I saw to discuss doing HoLEP is experienced, seemed fully competent, answered all my questions, including what other prostate surguries he does, why he was recommending HoLEP for me, etc. In my case, my prostate was too large for Rezum, TURP (which he also does) was ... He advised a procedure to fit my case; and Mayo has surgeons who do a variety of procedures.

My experience with Mayo has been really good. This is the kind of system you want to be in.

So, to conclude this 'general comment,' I would advise you to research all the procedures, but not go in asking for a particular one. Let someone who are inclined to trust advise a procedure for your case. If it doesn't pass the 'smell test,' based on your research, you are free to keep looking. And the system is important as well as the surgeon.