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DiscussionPossible Mircoandenoma muscle wasting
Neuroendocrine Tumors (NETs) | Last Active: Apr 18, 2022 | Replies (20)Comment receiving replies
Replies to "I sincerely hope you get a thorough work up at Mayo. It is very confusing I..."
@astaingegerdm thank you. My CBC count is starting to show stress on my liver and pancreas (and low creatine kinease, lower lipase and elevated liver I went from normal 15 AST to 40 in less than two months) and experiencing a lot of nerve pain, right now I only have internal medicine and rheumatoid on the books although they are trying to move up endocrinology and I now have neurology in April. By chance I went to ER and have a small bowel thickening that needs to be examined and most GI in FL only do colonoscopies. I’m on a wait list for gastro but they said the list is really long. Time is important now. I don’t know how much internal medicine can order that isn’t department specific… I.e. growth hormone suppression test, or a gallium 64. I may have to fly to Texas (not MD Anderson) to get the gallium approved and then fly back to Mayo if they can’t do it until GI- but not being well and having a 6 year old at home thst needs me- it’s a lot. I hope I can get everything done at Mayo.