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@mpb

My 3and half year old granddaughter has alopecia totalis. She did not have hair at 2and half was diagnosed and started topical steroids she finally grew a full head of short hair but lost it all after stopping the steroid cream. Tried cream again and didn’t help so dermatologist put her on oral steroids. After a couple months she still just has a little peach fuzz. Does anyone know of other successful treatments for this? Is stem cell rx available? Do you know of any Drs that have extensive experience and good successes rate of treatment. We are desperate to try and find help for her somewhere in the United States

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Replies to "My 3and half year old granddaughter has alopecia totalis. She did not have hair at 2and..."

@mpb how difficult and sad for your family to have a child who loses hair. Am I correct that you live outside the USA? Is there a large medical facility near you where your grandchild might see a specialist? Has your grandchild had a full medical workup to rule out any diseases that may cause the hair loss?
https://www.mayoclinic.org/diseases-conditions/hair-loss/symptoms-causes/syc-20372926
You may also want to read this information from the National Institutes of Health:
https://rarediseases.info.nih.gov/diseases/614/alopecia-universalis
I added this site about hair loss and treatment at Mayo Clinic. How long has your grandchild been on oral prednisone?

@mpb I haven’t heard from you and i hope everything is going well for you and your grandchild. I found this article on children and prednisone. It talks about what to watch for and how to give it and possible complications.
https://www.verywellhealth.com/prednisone-medication-information-2633522
I would love to hear from you!