Thanks for these links, I'll watch them tomorrow morning. It's been about seven years now. It started mild (so I didn't try and get attention for it as soon as I should.) It was made much worse by two recent surgeries for achalasia (the second appears to have been successful because I can swallow but not without pain. It's also become painful to talk)
Another piece of this puzzle is my second and third covid vaccine's made it much worse. Achalasia is an autoimmune disease and I got the vaccine shortly after the second surgery. Vaccines can alienate' autoimmune conditions, and achalasia being my fourth I'm normally much more careful with them, (I think I've taken as many if you include the flu with covid in the last two years as I have the in the past decade.), but the simple fact is if a vaccine can make me sick I had to figure Covid would have been a horrible experience. It seemed necessary to take the risk

The pain for the most part is in the throat and neck area (it can grow to the lower back). It's often a tight stinging pain, but can change into a kind of buzzing or tingling occasionally. I've had a number of tests (and x-rays) that rule out pretty much anything other than nerve pain.

I have a referral that's currently being processed for Oregon Health Sciences (they are the closest place to me that seems capable of sorting this all out. And the entire hospital system is in network with my insurance.)
Neuromodulation therapy is something they do in their nerve center, which is where I expect I'll probably end up.

Philip

Hi, this is Jan; I can join the conversation. The chronic pain issue is with my husband and he has seen a gal twice now who is treating him; the second time, he described the treatment as leaving him feeling peaceful and light. That's all I have for today. ... I would really like to know the associated ICD codes, so we could submit these $120 ea. treatments to the insurance company. Can anyone help me understand what those are?