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Lupron yeah or Lupron nay that is the question.

Prostate Cancer | Last Active: Sep 29 10:51am | Replies (112)

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Profile picture for Chris, Volunteer Mentor @auntieoakley

I am not sure this is what you are looking for, but here goes. It has taken 10 months, 4 facilities, and 3 doctors to finally get to the point we have this information.
My husband is 75, he has the largest prostrate any of these doctors has ever seen and PSA of 18 and rising. He has a large high grade tumor taking up half of prostrate. After a PSMA PET CT they cannot see any in his bones. The decision was made given that his testosterone was already fairly low and age and the hits he would take on his quality of life that the roughly 10% gain it would give him in treating this particular tumor, was not worth it. He is scheduled for radiation set up and will be beginning 28 treatments of radiation, without the lupron.
Are you starting treatments for prostrate cancer? What quality of life concerns do you have about the lupron?

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Replies to "I am not sure this is what you are looking for, but here goes. It has..."

Thank You! Thank You! for raising this question. In May I will be at the 42 month mark of Lupron. I HATE IT!!! It is always the “go to” drug all the doctors want to go to. My treatments have been intermittent so I know how much better I feel off it but every time my PSA rises it is always what they want to give me with whatever other treatments are being offered. MODERATORS please get involved with this. Ask Dr.Kwon for his expertise in this. And Doctor Davis for they are talking about giving me another shot in May. I DO NOT want it but I do not want to be a non compliant patient and if it will help cure me? I was told by doctor Kwon when I first came I was curable but the continued Lupron is taking a toll on me. Help!

I have finished my 28 weeks of Proton Beam Therapy.

Lupron side effects can include:
Depression
Anxiety
Insomnia
Frequent hot flashes
Emotional lability
Frequent crying
Bone loss
High blood pressure
High blood sugar
Low red blood count
Body hair loss
Erectile disfunction
Testicle shrinkage

Side effects that I haven’t experienced:
Weight gain
Muscle loss
Uncontrollable anger
Fatigue
Growth of breasts
Penis shrinkage

The longer you are on Lupron, the more likely you are to experience these effects that are caused by both Lupron and no or extremely low testosterone.

As awful as these side effects are, they are still better than uncontrolled metastasis of prostate cancer to your bones, heart and brain!