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Cancer: Nothing about this is normal.

Cancer: Managing Symptoms | Last Active: Feb 13, 2022 | Replies (26)

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@annebauer19

I can relate to all the previous comments. And I appreciate any and all suggestions. @ beachdog has been very helpful in recommendations and now I am out to buy bone brother thanks to @bb21. We are struggling with the post surgery digestion problems which are huge. We have been told a lot of it is related to inflammation caused by introperative radiation. But we are struck by how little our team knows in how to deal with this and make it better. Creon has produced no benefit that my husband can appreciate. And he is losing weight and feels such a loss of energy its devastating. Probably one of the best things our medical team did was to encourage him to use pain meds and marijuana which he was reluctant to use. They told us not to chase the pain, but try to anticipate it. There is no question that the day to day of this illness is so so difficult, Trying to find help that really helps is also difficult. And there are times our spirits do flag in spite of our best intentions. Fortunately something often does come around to buoy us up again, but it can be quite fortuitous or as my religious friends would say through the grace of God. Anyway we do the best we can. I will continue to reach out in any and every way I can. And I thank you all for persevering in the way you do.

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Replies to "I can relate to all the previous comments. And I appreciate any and all suggestions. @..."

@annebauer19 You're right, there have been some great suggestions. Perhaps because our treatments can vary so much, the medical professional never know what will be the right-for-this-patient combination? But I certainly do try to follow the get pain taken care of before it hits you! I use CBD softgels 20 or 50 mg strength as needed. It takes the edge off; there is so much that I cannot use, but these are on my medication list all my medical team has.

Today, I am looking out from our diningroom table to the trees, watching little birds flitting around and some squirrels racing amongst the branches. Earlier fog has given way to blue skies and sun, so everything is dappled with light. Hang in there!
Ginger