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Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: Sep 3, 2023 | Replies (136)
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@lmno

Hello! I am not sure if folks are still on this forum. I had an incidental finding of a Thymoma when I had a CT scan for pneumonia in Sept. 2021. After many tests, on Jan 14, 2022 I had a sternotomy surgery to remove a large B2:60% B:3 40% Thymoma. My case is rare, especially for Southern Oregon, the doctors had a tumor board to discuss what comes next. No chemo, but the area that would get radiation is large and there will be damage to my heart and R lung. My medical oncologist has reached out to Dr. Patrick Loehrer for me, hoping Dr. Loehrer will review my case. I am VERY concerned about the damage to my very healthy lungs and heart. I am 65 and (was) in excellent condition.

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Replies to "Hello! I am not sure if folks are still on this forum. I had an incidental..."
Colleen Young, Connect Director | @colleenyoung | Feb 13, 2022

Welcome, @lmno. Allow me to tag fellow thymoma members to bring them back to this discussion: @boola @andylevine @allisonsnow @jacquie1 @shilo14 @shaycoe12 @mddelaney64 @nenners @hppydg @anotherfinemass

I can imagine that you are concerned about having such a large area of your chest exposed to radiation therapy and being told that there will likely be damage to your lungs and heart. At Mayo Clinic, there is a Cardio-Oncology Clinic especially for cancer patients who have heart disease or who are at risk of heart disease before, during and after treatment for cancer. You can read more here:
- Mayo's Cardio-Oncology Clinic https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193

I wonder if you might be a candidate to get radiation at Mayo Clinic or for your Southern Oregon oncology team to work with the Cardio-Oncology team at Mayo.

Has has your recovery been from the sternotomy? When are you supposed to start radiation?

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