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@phoebeghostwriter

@loribmt Thank you so much for your reassurance. This Connect group has saved my sanity as I continue to strive for a diagnosis. Thank you for taking the time to paint me a beautiful picture of Mayo with your descriptive words.
Yes, my first appointment is in the main building in the Gonda building with internal medicine. Then I don’t have anything on the books until the next day- labs and a consult with rheumatology (due to some recent labs that I let internal medicine know about they are also trying to schedule endocrinology sooner) but for neurology later trip and I’m on wait list for GI. My case is complicated- I have some abnormal labs that could suggest a hormone producing tumor (high serotonin, high cortisol and a positive Insulin Growth factor) but also have a thickening of small bowel CT. I can tell you my symptoms are consistent with it as well- I went through 2 months trying to rule out Cushing. So, I’m hoping and praying that they run more diagnostic imaging and we get some healing or medicine so I can keep up with my 6 year old! 🙂

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Replies to "@loribmt Thank you so much for your reassurance. This Connect group has saved my sanity as..."

Oh golly, I can’t imagine going through all of those symptoms and having a young child at home. It’s pretty tough being all cheery and sunshine when you don’t feel well. It’s always important for our own health and wellbeing to remain positive but a little more of a challenge when you have a youngster present. ☺️

I’m hoping you find answers too. You’re going to be in excellent hands with the care providers at Mayo. They spoil us for anywhere else. 😅