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Multiple Autoimmune Diseases & Post Covid

Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)
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@becsbuddy

@lemmy2022 I’m so sorry that I didn’t see you posting sooner. You’ve had myositis for about 10 years and are taking prednisone. Are you taking any other medications for the myositis? It seems like I’m going to ask you lots of questions, but id like to get to know you and your situation better. Is that okay? What types of physicians are monitoring your disease? An ophthalmologist, a rheumatologist, an endocrinologist and a dermatologist? Ive been on prednisone for about 6 years. I started at 60 mg and have slowly come down to 5 mg. Ive been followed closely because i developed cataracts and osteoporosis from the prednisone.
I would love to see you get some proper care..Can you ask your doctor for some appropriate referrals?

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lemmy2022 | @lemmy2022 | Feb 12, 2022

Thank you for your concern. I am a broken woman with this curse I call it. I live in Nfld Canada and fortunate enough to have the best medical care there is offered. Have most most of my hair twice, cataracts, glocoma, eye implants now sight gone left eye. Suffered a stroke a year ago so confined wheelchair. Now my teeth are loosening from my gums, my dentist cemented them so lasting for now. That was for my four front crowns.

I am so tired and feel so sad. Cannot enjoy my family much anymore and feel left out a lot. They try to include me but I don’t last long.

Predisone is keeping me alive I guess and my next fear is difficulty in swallowing. That’s part of disease also.
My Doctor is a professor oh rheumatologiy at a our local University. I trust his care.

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