← Return to Sjogren’s Syndrome – Introduce yourself and meet others

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@curlyq

Hello! I am in the process of getting an official diagnosis as well. I am a 58 year old woman who has had extreme vaginal dryness, dry eyes, dry skin and joint pain for almost 30 years. My vagina even with treatment is so dry it bleeds, my eye test is positive. I also have an appointment for a lip biopsy and to see a rheumatologist. I have fibromyalgia, underactive thyroid, hearing loss, trigeminal neuralgia, and peripheral neuropathy. For the dry mouth, my dentist has recommended brushing and flossing 3 times a day. Also, Xylimelts, Gengigel, Opti-rinse, and x-pur remin toothpaste available at any Shopper's Drug Mart or on Amazon. I would also get a good dental check-up. Sorry for all the advice, was a RN for 37 years. My problem is telling people. I find people either go overboard with sympathy or completely minimize it. So I have decided to only talk about it with certain people and get some professional help. Thank you for listening to me.

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Replies to "Hello! I am in the process of getting an official diagnosis as well. I am a..."

Thank you for your reply, I hope you get your diagnosis soon. Well, apparently for Sjogren's there's no such thing as soon, but chat rooms like this one might one day change this. I get what you're saying about people's reactions. But then, they probably have their own cross to bear, so as long as we find some people who understand, we're fine. Have a nice weekend!

Sjogrens has done a number on my teeth, it has taken almost all of them. You have no control over sjogrens. I have learned to eat without them, this has happened much later in my life. Such is life!

Ask your rheumatologist for a Rx Ed called Evoxac. It is for dry mouth. It really helps! I’ve had Sjogrens for about 15-20 yrs. I also have Erythromelagia and Peripheral Neuropathy. You can contact me directly to discuss further if u want .

Ask your dr to prescribe Evoxac for your dry mouth. It really helps. I also have Sjogrens.