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Tongue-biting with oral lichen planus

Autoimmune Diseases | Last Active: Nov 1, 2022 | Replies (18)

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@becsbuddy

@lcr Your episodes of tongue biting sound very strange. Have you experienced them for a long time or actually hurt yourself? What does your doctor say about the tongue biting? I agree with the other members who recommends mouth guards, but only after you have had a good checkup with your doctor.
You also say that you have OLP, oral lichen planus. Is it well controlled? Does your doctor see any connection between the OLP and tongue biting?

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Replies to "@lcr Your episodes of tongue biting sound very strange. Have you experienced them for a long..."

@becsbuddy - yes, I do have OLP too. It had cleared up completely when I was on the full dose of Methotrexate but I had to be weaned off it after about three years because my dermatologist was concerned it might affect my fatty liver disease. As soon as I got off Methotrexate my OLP and psoriasis returned with a vengeance. I have been on biologics the past two or three years but they haven’t been quite as effective as the Methotrexate was. I have just started on a new one - Skyrizi - but I have had only one dose so far. I’ll have to wait about three months to see results - if any.

Between Fibromyalgia, Psoriasis and GERD due to a hiatal hernia (yes, I’m under treatment for all), I’m a mess. 🤷🏼‍♀️ The tongue and cheek biting is just a random thing that happens, but like everyone else who has experienced it before knows, once you bite, you keep doing it involuntarily - subsequent bites often happen when I’m eating. The OLP has made the tongue bite even more painful than it usually is.

@becsbuddy - sorry … I just noticed your reply was to @lcr and I jumped in to answer! My apologies, @lcr!

My OLP is not controlled. I am starting methotrexate tomorrow, after topical and steroids taken orally didn't help. My general practitioner had me on a muscle relaxant for a couple weeks, but it didn't help much at all. It may just be that my tongue is swollen, but no one seems to know.