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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@johnbishop

Hello @whaler33, Welcome to Connect. I'm not sure @prednisone4gca is still following Connect but there are other members like @tsc, @ripley, @654321 and others may have some suggestions to share with you. The Vasculitis Foundation has some good information you might find helpful until other members can share their experiences and suggestions with you.

Giant Cell Arteritis (Temporal Arteritis) - Vasculitis Foundation: https://www.vasculitisfoundation.org/education/forms/giant-cell-arteritis/

What have you found to be the most difficult part of the diagnosis for you?

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Replies to "Hello @whaler33, Welcome to Connect. I'm not sure @prednisone4gca is still following Connect but there are..."

Hi @whaler33 I hope you get an answer from your biopsy. It's a great relief to get a diagnosis. What symptoms did you experience and for how long? If it is GCA, we are lucky that symptoms are managed so well for most people with prednisone. I began a high dosage of 40 mg in May and now just started a taper to 3mg. My symptoms have disappeared with the exception of a little twinge here and there. I just try to respect my body by eating well, exercising, getting proper sleep (on a high dosage of prednisone that will be challenging and NEVER take melatonin). Also, try to avoid high stressors or pushing yourself too hard. My mother-in-law had GCA, diagnosed in her 80s, and lived to be nearly 100. I wish you the best and keep us posted.