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Recently diagnosed with Small Fiber Neuropathy - so many questions
Neuropathy | Last Active: Mar 8, 2022 | Replies (78)Comment receiving replies
Hello, Chris and others. I was diagnosed with SFN in 2004. My neurologist at the time gave me a test which was very painful. He directed me to go to a teaching hospital. At that time, I went to Shands in Jaxsonville. Because of some sort of mixup, my neurologist didn’t send my needle results, so they gave me the test again. Needless to say, I never went back to that Doctor. Shands was no help except to put me on gabapentin and atriptalyne.
I’ve been on gabapentin since then, only increasing the dosage. Because of getting older 🙂 , I had to stop the amitatripyine.(?)
The only thing that has helped is a spinal stimulator, but I had to have it removed.
Sooo gabapentin 3600 mg a day, and still hurting, cold feet,etc.
Sorry for so long a post
Replies to "Hello, Chris and others. I was diagnosed with SFN in 2004. My neurologist at the time..."
I take 2400 gabapentin and it doesn't do anything really. And I tried other drugs too and many other therapies. My type 2 diabetes is under control and my only real concern now is the daily pain when my nerves in my feet flare up. It is torture living like this. My theory is that the pain is in our brain or processed by our brain. How do we stop the pathway from our feet to our brain? Creams and all that on the skin won't work. Any ideas?
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I am only taking 300 mg of Gabapentin per day. One pill at nighttime. I wonder why it's such a low dose compared to what your taking??!!