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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 5 days ago | Replies (914)

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@novajeff

Thank you!

I try to help people here and on the Reddit BFS group (things can get a little fishy over there, as fair warning) because I’m hoping I can give some comfort to some of the (probably MANY) undiagnosed patients suffering with these symptoms and when they google, thinking the worst.

To answer your question, yes, I am able to have the same if not better physical activity. Still ups and downs. Still bad nights and bad days.

Last night I had aching feet from it, and restless sleep, and when I woke, my calves were crampy and popping more than usual. Still, I hopped in the car and ski’d hard for 4 hours, and after some rest, I plan on paddle ball this evening. I’d say that’s pretty active!

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Replies to "Thank you! I try to help people here and on the Reddit BFS group (things can..."

@novajeff Awesome news, you're able to stay active! Thanks for being real regarding your symptoms and acknowledging they still exist despite your activity..

Thank you for supporting the Connect community. Comfort in connecting with others is so important. No doubt you have made a difference in someone's life.

You mention having bad nights. How do you handle those?