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Has anyone experienced internal vibrations?
Brain & Nervous System | Last Active: Sep 29 9:08am | Replies (901)Comment receiving replies
@novajeff I know I'm responding to your post from last year but I was inspired by you and just had to give you a shout out!
What an impactful account of what you went through with BFS/CBFS and how you managed to come out on the other side through perseverance, a little luck, and positivity. I like that you say your mind and body improved, and you recognized you weren't dying from your symptoms or sacrificing degeneration. This is a huge revelation to pull strength from, and be able to manage existing symptoms in a more productive manor. Good for you!
Are you still able to maintain the activity level you mentioned last year at this time?
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Thank you!
I try to help people here and on the Reddit BFS group (things can get a little fishy over there, as fair warning) because I’m hoping I can give some comfort to some of the (probably MANY) undiagnosed patients suffering with these symptoms and when they google, thinking the worst.
To answer your question, yes, I am able to have the same if not better physical activity. Still ups and downs. Still bad nights and bad days.
Last night I had aching feet from it, and restless sleep, and when I woke, my calves were crampy and popping more than usual. Still, I hopped in the car and ski’d hard for 4 hours, and after some rest, I plan on paddle ball this evening. I’d say that’s pretty active!