1. < Digestive Health

Acid Reflux and its Symptoms: Are they chronic?

Posted by mwarenski @mwarenski, Feb 13, 2017

Does anyone have a variety of symptoms associated with Acid Reflux that are chronic? Such as chest pain, back pain, weird tastes, etc.? Please tell me your symptoms. A little worried here...thinking it may be something more serious.

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Feb 9, 2022
In reply to @rozy288 "I’ve had chronic digestive disorders w/ 6 diagnoses one being GERD and Gastritis , IBS ,..." + (show)
@rozy288

I’ve had chronic digestive disorders w/ 6 diagnoses one being GERD and Gastritis , IBS , Esophagitis, …. 6 Gastro Dr’s , even Mayo Clinic Jacksonville recently for more tests . I deep wet belch over 2000x a day/ night / my gut and intestines never stops churning loud . Wakes me up ⬆️. I sleep propped up 3 pillows . Eat so clean and do everything right . Still I have been sick w/ this everyday for 8 years. No more tests to do . No diet ( I’ve done all the elimination diets ) , no RX to help now , I’ve tried every holistic treatment and diff herbs and pre and pro biotics .
It’s ruined my life pretty much .
I’m always filled w/ gas . So I’m a medical mystery. I just turned 60 ( look 53). I pray 🙏 everyday for a days relief 🥲 here and there , but it doesn’t help . I hope someone can help you .

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@rozy288 - Has there been talk about problems with gastrointestinal motility, abnormalities with how food is moving through the GI tract?

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1 reply
rozy288 | @rozy288 | Feb 9, 2022
In reply to @astaingegerdm "@rozy288 - Has there been talk about problems with gastrointestinal motility, abnormalities with how food is..." + (show)
@astaingegerdm

@rozy288 - Has there been talk about problems with gastrointestinal motility, abnormalities with how food is moving through the GI tract?

Jump to this post

Yes I had 5 hr stomach emptying study 4 years ago at Duke .
Plus soooooo many other GI tests in 8 years. ;( it’s getting hard to live with.

REPLY
1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Feb 9, 2022
In reply to @rozy288 "Yes I had 5 hr stomach emptying study 4 years ago at Duke . Plus soooooo..." + (show)
@rozy288

Yes I had 5 hr stomach emptying study 4 years ago at Duke .
Plus soooooo many other GI tests in 8 years. ;( it’s getting hard to live with.

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I know the feeling… plus trying drug after drug, hoping for a miracle.
My journey started 13 years ago. There are several issues competing with each other! I have gotten some problems solved, but some persist- such as abnormal motility.
I also went to Mayo Jacksonville for a few years, also MUSC in Charleston and now trying a Savannah doctor.
Has anything helped at all?
Don’t give up.

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rozy288 | @rozy288 | Feb 10, 2022

Thank you , nothing helps me . I do go through a bottle of Ultra Pepto every week for 7-8 years . So my stool is always tarry and black . I’ve tried everything they make for gut health .. a laundry list . Yes all the RX’s too . It’s just amazing that how healthy I eat and never eat fast food , no caffeine , low dairy , low sugar , lots of water . We rarely even go out to a nice restaurant or lunch because I’m so limited on what I can eat . I’m just as bad when I’m on empty stomach though .
My belches are thousands and huge , wet .. my gas is so loud on my intestines, esp at night . It goes for hours and hours .
I’ve even done hypnotherapy 3 x . Didn’t work . I can’t be hypnotized. I’ve done some acupuncture. Tried medical marijuana gummies ( hated it ).
Tried High end CBD … nope .
I’m so fatigued in day and hungry all the time . I have anti anxiety med because this really gets me down ( also tried antidepressants for a few months over the years ( diff ones ). I take Ambien 5 mg to help sleep but I wake up 3 hrs later and then it’s hell .
I’ve prayed for years for healing, even temp healing . My kids are both getting married w/ big weddings April and Sept and I’m not even excited because of what I go through daily/ nightly.
I hope you get your full answers. You are nice to ne concerned. My poor hubby has to deal w/ me because of this . It’s no fun for him for years now too .
What helps you ?
God Bless you….

REPLY
2 replies
wreath | @wreath | Feb 11, 2022
In reply to @rozy288 "Thank you , nothing helps me . I do go through a bottle of Ultra Pepto..." + (show)
@rozy288

Thank you , nothing helps me . I do go through a bottle of Ultra Pepto every week for 7-8 years . So my stool is always tarry and black . I’ve tried everything they make for gut health .. a laundry list . Yes all the RX’s too . It’s just amazing that how healthy I eat and never eat fast food , no caffeine , low dairy , low sugar , lots of water . We rarely even go out to a nice restaurant or lunch because I’m so limited on what I can eat . I’m just as bad when I’m on empty stomach though .
My belches are thousands and huge , wet .. my gas is so loud on my intestines, esp at night . It goes for hours and hours .
I’ve even done hypnotherapy 3 x . Didn’t work . I can’t be hypnotized. I’ve done some acupuncture. Tried medical marijuana gummies ( hated it ).
Tried High end CBD … nope .
I’m so fatigued in day and hungry all the time . I have anti anxiety med because this really gets me down ( also tried antidepressants for a few months over the years ( diff ones ). I take Ambien 5 mg to help sleep but I wake up 3 hrs later and then it’s hell .
I’ve prayed for years for healing, even temp healing . My kids are both getting married w/ big weddings April and Sept and I’m not even excited because of what I go through daily/ nightly.
I hope you get your full answers. You are nice to ne concerned. My poor hubby has to deal w/ me because of this . It’s no fun for him for years now too .
What helps you ?
God Bless you….

Jump to this post

Acid reflux is nothing to play will as it can cause other health issues. My husband had your same problems. After much research, he went to the Mayo Clinic in Jacksonville and had the Linx procedure done. It was successful and after an adjustment period, his problems with acid reflux was over. However, unknowing to him, the acid reflux had already damaged his lungs. You can aspriate the acid into your lungs and not realize it. So, you need to look into seeing if you qualify to have the LYNX procedure. I witnessed first hand how miserable acid reflux can make your life. I hope this information will help you get some relief.

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rozy288 | @rozy288 | Feb 11, 2022

@wreath , I cannot have that Lynx procedure as I have way way to much gas build up ⬆️ in my body on a daily / nightly basis . I need to be able to Belch over and over to release it . I don’t have Acid reflux , so no acid is coming up into my throat or mouth . It’s just constant churning and non stop Loud horrendous gas noises in my gut and small intestines that cause 1000’s of deep , belches . When you get LYNX you are unable to belch out the gas out . Sometimes my gas goes out the other way but more often it’s very deep non stop 🛑 burps . I don’t get nauseous too too much but you also cannot throw up if you get LYNX ( it’s dangerous because of aspiration).
It doesn’t matter how healthy I eat ( which I eat extremely healthy), or if my stomach is empty. The problem is always there .
It makes it hard as my husband and I can’t really socialize or go out to eat once in a while like we used to be able to do .
It’s especially bad in middle of night or right before I wake up at 6 am -8 am . Also from 1-4 pm .
It’s just a real mess .
A medical mystery…. All my diagnoses but nothing can help me .
It’s a hard way to live , that’s for sure .
Glad your husband procedure worked for him . He’s one of the lucky 🍀 ones . Thanks.

REPLY
3 replies
wreath | @wreath | Feb 11, 2022
In reply to @rozy288 "@wreath , I cannot have that Lynx procedure as I have way way to much gas..." + (show)
@rozy288

@wreath , I cannot have that Lynx procedure as I have way way to much gas build up ⬆️ in my body on a daily / nightly basis . I need to be able to Belch over and over to release it . I don’t have Acid reflux , so no acid is coming up into my throat or mouth . It’s just constant churning and non stop Loud horrendous gas noises in my gut and small intestines that cause 1000’s of deep , belches . When you get LYNX you are unable to belch out the gas out . Sometimes my gas goes out the other way but more often it’s very deep non stop 🛑 burps . I don’t get nauseous too too much but you also cannot throw up if you get LYNX ( it’s dangerous because of aspiration).
It doesn’t matter how healthy I eat ( which I eat extremely healthy), or if my stomach is empty. The problem is always there .
It makes it hard as my husband and I can’t really socialize or go out to eat once in a while like we used to be able to do .
It’s especially bad in middle of night or right before I wake up at 6 am -8 am . Also from 1-4 pm .
It’s just a real mess .
A medical mystery…. All my diagnoses but nothing can help me .
It’s a hard way to live , that’s for sure .
Glad your husband procedure worked for him . He’s one of the lucky 🍀 ones . Thanks.

Jump to this post

I am so sorry that that nothing seems to work for you. Don't give up though. I stayed on the net searching for anything to help my husband. And the LINX procedure did solve his acid reflux. However, he had already developed pulmonary fibrosis in his lungs and that was the beginning of the end for him. That's why I tell everyone I know that has acid reflux to get it seen about. May God bless you with an answer soon.

REPLY
clutch | @clutch | Feb 11, 2022
In reply to @rozy288 "@wreath , I cannot have that Lynx procedure as I have way way to much gas..." + (show)
@rozy288

@wreath , I cannot have that Lynx procedure as I have way way to much gas build up ⬆️ in my body on a daily / nightly basis . I need to be able to Belch over and over to release it . I don’t have Acid reflux , so no acid is coming up into my throat or mouth . It’s just constant churning and non stop Loud horrendous gas noises in my gut and small intestines that cause 1000’s of deep , belches . When you get LYNX you are unable to belch out the gas out . Sometimes my gas goes out the other way but more often it’s very deep non stop 🛑 burps . I don’t get nauseous too too much but you also cannot throw up if you get LYNX ( it’s dangerous because of aspiration).
It doesn’t matter how healthy I eat ( which I eat extremely healthy), or if my stomach is empty. The problem is always there .
It makes it hard as my husband and I can’t really socialize or go out to eat once in a while like we used to be able to do .
It’s especially bad in middle of night or right before I wake up at 6 am -8 am . Also from 1-4 pm .
It’s just a real mess .
A medical mystery…. All my diagnoses but nothing can help me .
It’s a hard way to live , that’s for sure .
Glad your husband procedure worked for him . He’s one of the lucky 🍀 ones . Thanks.

Jump to this post

@rozy288 ,
I’ve been following along your journey a while now. It surely is a mystery, but there has to be help out there somewhere for you. What did the Mayo Drs. do for you once you finally got in for a real appointment?

Also have you heard of The Undiagnosed Disease Network at Duke? It’s designed for patients similar to your situation I can send links if you need them.

REPLY
ZeeGee | @fourof5zs | Feb 11, 2022
In reply to @rozy288 "Thank you , nothing helps me . I do go through a bottle of Ultra Pepto..." + (show)
@rozy288

Thank you , nothing helps me . I do go through a bottle of Ultra Pepto every week for 7-8 years . So my stool is always tarry and black . I’ve tried everything they make for gut health .. a laundry list . Yes all the RX’s too . It’s just amazing that how healthy I eat and never eat fast food , no caffeine , low dairy , low sugar , lots of water . We rarely even go out to a nice restaurant or lunch because I’m so limited on what I can eat . I’m just as bad when I’m on empty stomach though .
My belches are thousands and huge , wet .. my gas is so loud on my intestines, esp at night . It goes for hours and hours .
I’ve even done hypnotherapy 3 x . Didn’t work . I can’t be hypnotized. I’ve done some acupuncture. Tried medical marijuana gummies ( hated it ).
Tried High end CBD … nope .
I’m so fatigued in day and hungry all the time . I have anti anxiety med because this really gets me down ( also tried antidepressants for a few months over the years ( diff ones ). I take Ambien 5 mg to help sleep but I wake up 3 hrs later and then it’s hell .
I’ve prayed for years for healing, even temp healing . My kids are both getting married w/ big weddings April and Sept and I’m not even excited because of what I go through daily/ nightly.
I hope you get your full answers. You are nice to ne concerned. My poor hubby has to deal w/ me because of this . It’s no fun for him for years now too .
What helps you ?
God Bless you….

Jump to this post

@rozy288

I am very curious as to what your “extremely healthy” diet is… could you give me a couple of days or so of example menus of what your diet is?

ZeeGee

REPLY
1 reply
rozy288 | @rozy288 | Feb 12, 2022
In reply to @fourof5zs "@rozy288 I am very curious as to what your “extremely healthy” diet is… could you give..." + (show)
@fourof5zs

@rozy288

I am very curious as to what your “extremely healthy” diet is… could you give me a couple of days or so of example menus of what your diet is?

ZeeGee

Jump to this post

@zeegee , mostly just boneless chicken breast , sweet potato, jasmine rice , low fat yogurt sometimes, fresh fish grilled , zucchini grilled , low fat mozzarella cheese , pork loin grilled , sometimes green beans . Decaf ginger tea with Lemon and organic honey. Sourdough toast lightly buttered . Oatmeal with honey and cinnamon. Once on a while I will eat pasta w/ my homemade spaghetti sauce ( that I cook for 5 hours ). Not too often because it’s acidic.
A nice salad of mixed greens and olives and such ( gotta be careful with raw).
No caffeine, no fast food , no fried food , low sugar . Lots of water . Rarely ever eat a meal outside the home . So that’s extremely healthy eating .

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