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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I am new to the group, and appreciate all the posts I have read. I am 78 years young, this is my 3rd occurrence of PMR, each one about 10 years apart. This occurrence has lasted 1 year and now down to 4 mg (from original 10mg) I titrated off 1 mg each month. dropped to 3mg and shortly after developed Dactylitis (Sausage fingers) in both hands, but cannot take NSAIDs due to compromised kidney function. So doctor suggested I return to 4 mg and see if I responded. I suppose the reason for my post is actually more about the emotional aspect. I am not a person to identify with disease in a "victim" stance, but must admit I am deeply in a pitty pot right now! I would like to be able to have a healthier attitude around this and, as termed in holistic fields) embrace and accept and stop fighting my inner thoughts. would love feedback from others who have taken this path (I am not a meditator) but do believe in mantras and affirmations.
Replies to "I am new to the group, and appreciate all the posts I have read. I am..."
Hi @sashakay, I would like to add my welcome to Connect along with @amandajro and other members. I thought that you might also find the following discussion and article helpful.
-- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/
"Chances are, your sausage fingers are caused by water retention, which can happen when you ... Surprisingly, eating too much salt can have the same effect." --- 5 Signs Your Body Wants You To Cut Back On Salt: https://www.pacificmenshealth.org/blog/5-signs-your-body-wants-you-to-cut-back-on-salt
@contentandwell post in another discussion mentions this problem with salt - https://connect.mayoclinic.org/comment/249573/
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Hello @sashakay and welcome to Mayo Clinic Connect. Losing confidence along a health journey is common, I would think. It is good that you are seeking community and support!
You will notice that I moved your post into an active discussion on PMR to allow for other members to join in and share their experience with you as well.
Having a healthier attitude despite your circumstances can be incredibly life altering. Have you started using mantras and affirmations such as you mentioned? If so, what changes have you noticed?