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Persistent pain in top left side of back below the shoulder
Polymyalgia Rheumatica (PMR) | Last Active: Mar 31, 2022 | Replies (18)Comment receiving replies
Yes, I have been on Prednisone for almost 6 years. When I get down to 5mg, my pain gets so bad that I have to go back up. It’s been a constant battle, and I’ve been to 3 Rheumatologists. I go to Duke in March, and I am hoping I can get on a better treatment plan, and they will work with me.
I was diagnosed in my late 40’s, and I am 53 now. I was always active, and in shape. That has all changed now sadly. It’s tough. I’d like to be able to do things and enjoy life without all the pain.
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Oh my gosh, you are too young for this! I am 59 and my doctor says I'm about 20 years too young to have it. I wonder what triggered it for you. This is such a mysterious disease. I don't think people on the outside understand how crippling and life altering. I am discouraged by all the people in this forum talking about struggling for years and years, remission, out of remission, etc. Yet my doctors say it will be 2 years on average. Maybe they just don't want to give the bad news.