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@johnbishop

@milld835, I'm not a doctor and have no medical training but I've always been told by my rheumatologist and primary care docs that the goal of treating PMR with prednisone is to taper off slowly and listen to your body while tapering down. If I was pain free on 20 mg prednisone, I would definitely try tapering down by 2.5 mg while keeping a pain log with the daily dosage of prednisone. If I had minor pain/aches the following day (less that 2 on my pain scale), I would continue for a couple of weeks to see if the pain got worse or went away. Depending on how I felt, I normally adjusted up by 1 mg if the pain got worse or down by another 2.5 mg if I felt really good. Keeping a log will help you when you talk to your doctor.

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Replies to "@milld835, I'm not a doctor and have no medical training but I've always been told by..."

Hi John...this info is very helpful. One question I've had is how long to stay on a particular dosage to see if the pain subsides. For example, right now I"m on 17mg. As mentioned before, I had a flare up when I ramped down from 20 to 15mg. I tried 16 and still had pain but 17 made a big difference. I'm not totally pain free (about a 1) but doing much better after two weeks on 17mg. In your experience, if you are doing pretty well (very little pain) and stay on the same dose, does the pain often level out after a while?? I'm going for a blood test today. Hoping I'm still in the normal range but I"m sure it won't be 0.