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Should 4+ Pseudomonas be treated?

MAC & Bronchiectasis | Last Active: Jun 24 7:41am | Replies (115)

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@tlynng79

I have been dealing with this for years and finally had someone test my sputum and consistently find pseudomonas aeruginosa. I have exhausted all tests that I know, even did every genetic test possible with everything negative. I am now on Azithromycin 250mg daily to function, but this is taking so much of my life away and I am still with no answers why. Are there any other tests that can be done? Mycobacterium Gordonae and haemophilus influenzae were also found. Should I seek more help from the Mayo Clinic that maybe I’m not getting?

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Replies to "I have been dealing with this for years and finally had someone test my sputum and..."

Hello, and welcome to Mayo Connect. As you may notice, your post has been moved to an active discussion between people dealing with pseudomonas and its treatment. You might find it helpful to read through some of the posts to learn what treatments others have had.

The diseases we primarily discuss here, Bronchiectasis, Mycobacterial infections (often abbreviated MAC, MAI or NTM) and pseudomonas, are fairly rare and it is sometimes hard to find good information about them. Even many doctors are unfamiliar with them - my own fantastic, experienced primary provider (PCP) referred me immediately to a pulmonologist when I was diagnosed 4 years ago. Even some pulmonologists have little experience treating our infections.

May I ask a few questions so we can get to know you a bit better?
When you say you are dealing with "this", can you describe your symptoms, diagnosis, and when you first sought treatment?
Do you have asthma, COPD, emphysema or bronchiectasis? And is your doctor or pulmonologist?

I hope you will share with me and the group, so we can offer suggestions about treatments and lifestyle changes that have worked for us.
Sue

@tlynng..I have been nebulizing Colistin every other month for 3 years to keep the pseudo at bay..it’s been a life savour