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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Nov 30 4:16pm | Replies (326)

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@meri91364

I am trying to find a Dr. in the Los Angeles area that knows about and treats arachnoiditis. I have had this foe 6 months after a botched epidural. I am in alot of pain, have seen several Drs , am getting no help. There are not alot of Drs that even know about this awful condition. Any help would be appreciated.

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Replies to "I am trying to find a Dr. in the Los Angeles area that knows about and..."

@meri91364 Hello. I wanted to share this link for Arachnoiditis Hope which is in southern California. You could reach out to them and perhaps learn from other patients in the area. This is their page on helping the condition.
https://arachnoiditishope.com/physical-measures/
You may also want to consult a physical therapist who does myofascial release which is a type of massage like physical therapy. Here is our MFR discussion. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You can search for a MFR therapist at this link. http://mfrtherapists.com/

You may be able to connect with others in these discussions about arachnoiditis that can be found in the Spine Health group https://connect.mayoclinic.org/group/spine-health/

You may be interested in these discussions:
– Arachnoiditis https://connect.mayoclinic.org/discussion/arachnoiditis/
– Arachnoid Cyst https://connect.mayoclinic.org/discussion/arachnoid-cyst/

I'm sorry you are suffering. I had one epidural in my neck that caused me problems and I said no more. I am a cervical spine surgery patient. It is hard to live in constant pain. Have you heard of myofascial release therapy before?

Hello @meri91364. You will notice that I have moved your post into an existing discussion on Arachnoiditis to continue the conversation with members. I see you had previously commented on this discussion so will be familiar.

@jenniferhunter has also been so kind as to share some information with you and in addition, wanted to also share the following link which may be helpful in your search as well: https://arcsology.org/doctors-tribute/

Are you hoping to stay in the LA area for care and treatment?