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Autoimmune encephalopathy anyone?

Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)

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@drdash

My simplistic understanding of He or SREAT, or whatever they call it, is that it is autoimmune in nature. The body sees the brain as a foreign substance and reacts by attatcking it with T-cells (lymphocytes) which causes the brain to swell. Why/how the T-cells permeate the blood-brain barrier is unknown, and, as with all autoimmune diseases, what triggers the body to attack itself is complicated and has genetic causes.

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What symptoms do you have during one of your "attacks"?
Mine are a myriad of symptoms. Headaches, burning sensation in mouth & throat, and even tongue. tremors, usually in hands, forgetfulness and loss of simple words. Recently, a final insult- loss of hair!
My initial attack, in late October & November, which threw me into a hospital full of Covid patients and overworked and under-trained medical staff, was severe speech impairment, then loss of speech, complete loss of balance, and loss of common sense. The tremors and a coma followed up with horrific hallucinations.
I am now on a monthly regiment of IVIG.