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DiscussionAutoimmune encephalopathy anyone?
Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)Comment receiving replies
Replies to "My simplistic understanding of He or SREAT, or whatever they call it, is that it is..."
What symptoms do you have during one of your "attacks"?
Mine are a myriad of symptoms. Headaches, burning sensation in mouth & throat, and even tongue. tremors, usually in hands, forgetfulness and loss of simple words. Recently, a final insult- loss of hair!
My initial attack, in late October & November, which threw me into a hospital full of Covid patients and overworked and under-trained medical staff, was severe speech impairment, then loss of speech, complete loss of balance, and loss of common sense. The tremors and a coma followed up with horrific hallucinations.
I am now on a monthly regiment of IVIG.