← Return to "Learning never exhausts the mind”: Meet @athenalee

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@athenalee

Too funny Laurie! I greatly enjoyed hearing from you. Thank you. I don’t do much typing on my iPhone, too small and I have hand tremors…very messy! Siri is useful though. I use my iPad for most of my writing. I recommend one.

Peripheral neuropathy is just weird and painful. I take Gabapentin when I’m home from work. It helps some. I also take a muscle relaxer at night which really doesn’t do anything for pain, but is helpful for sleep. I’d do cannabis, but it interferes with my immunosuppressant meds, along with a lot of pain meds for neuropathy.

For me, I’m hopeful my new rheumatologist I get to see next week can help, as my neuropathy is caused by an autoimmune disease. Then, two weeks later a new neuromuscular doctor…my hope is they can coordinate with my transplant team to actually devise a care plan for me!

How’s your new place? Are you able to eat any good food these days?!

Hugs, Athena

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Replies to "Too funny Laurie! I greatly enjoyed hearing from you. Thank you. I don’t do much typing..."

@athenalee Hello Athena! Thankyou very much for your helpful response. I'm still in a quandary as to whether my leg pain is caused from neuropathy or possibly from vascular issues. You'll maybe recall that I have had Giant Cell Arteritis for three years now, as well as several other autoimmune diseases , so it could well be either. From my former great team of 7 or 8 specialists, none have ever addressed this particular issue and I've had so many other issues, I didn't pursue this one as insistently as I should have. Now that I've moved to a different place and am almost completely without medical aid for the long haul, woe is me! You're fortunate to be in a centre with doctors available to you and I'm very happy for you. I hope your two new upcoming appointments will have great results!
You asked about my new digs...well, sad to say, this place hasn't worked out for the best. I just had good news this week though that I've been accepted into an Assisted Living facility in a town close to my family! We're all elated! Two of my sons and their wives will travel to my present location to move me and my stuff! My move-in date is February 22nd. Unfortunately, we have a lack of available doctors right now in British Columbia and none are taking new patients. The only solution for me will be an ambulance ride to the hospital an hour away. However, I'm really hopeful that my new environment will bring some stress-free and peaceful living and a renewed lease on a healthier life! Ever the optimist!
All the best to you, Athena. Hugs back. Laurie.
P.S. I want to write much more but am afraid my little cell phone might crash and delete! More later!