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Newly-diagnosed with Bronchiectasis and shocked
MAC & Bronchiectasis | Last Active: Feb 13, 2022 | Replies (13)Comment receiving replies
I have bronchietasis and MAI and was advised to stay away from steam and hot showers. I always thought hot showers were good especially if I had a head cold. That’s the way I was raised. I try to avoid all steam even from the dishwasher or sink. Now I jump in the shower using the long type of shower head that I can remove so it doesn’t spray in my face. Wash quick and get out. My ID doctor said just make it quick. I am not being treated as yet but he had me do a CT scan and will talk to him next month. I am really worried because I really Do Not want treatment. Can anyone advise if they do not receive treatment and how it has progressed.
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The way I was diagnosed was by having a bronchoscopy. I had no tissue damage and no cavities in my lungs. They also did not find any bacteria in my lung when doing this procedure. They did biopsy a nodular in my lung that then grew the bacteria. That is the only way they found it. I thought after the test I was clear but after about two weeks the Doctor called me with the news. Just so you know sometimes very hard to diagnose. I was also told not to use a humidifier or anything with water . I do have air purifiers throughout the house now with Hepa filters. I had a chest X-ray in 2016 which showed nothing wrong. Then in August of 2021 it showed bronchietasis and mild lung scarring. Doctor said the bacteria could have gotten in my lung years ago.So will never know which is frustrating. Thought I was so healthy and did everything right so something like this wouldn’t happen. I wish you the best of luck.