Connect
← Return to Pacemaker recipients: Looking for support from others
Discussion
Pacemaker recipients: Looking for support from others
Heart Rhythm Conditions | Last Active: 11 hours ago | Replies (497)Comment receiving replies
Is this group still active? Have had a pacemaker for 2 years. Initially no problems, but now I have terrible pain in my left arm below my shoulder and above the elbow. I have been to 3 orthopedists and my electrophysiologist. They all recommend PT, which I am receiving, but I do not think I should have such debilitating pain. I can't get anyone at Yale New Haven Hospital to help me. They ALL say it's not the pacemaker, and I think it is!! Whose body is this??? I had a pikk line for chemo in this arm (left) 15 years ago, but now I get debilitating jolts of pain that take my breath away. I'm at a loss as to what to do next. Any thoughts??? Thank you. Pat
Replies to "Is this group still active? Have had a pacemaker for 2 years. Initially no problems, but..."
Connect
Hi @pngbee74 Welcome I see your experience some pain in your arm? Interesting I had a pacemaker with defibrillator for about 10 years and can't say I had any pain in my arms. Does your pacemaker so a defibrillator? The kind of pain your describing sounds like a shock but at.least when I had to gets delivered a treatment It was brief and in my chest. I noticed you talked about TKR in another post could it have something to do with that? I'm not familiar with that problem but I also know that pacemakers usually only can affect the heart area . I have heard of people complaining about a strange sensation from the leads of the pacemaker but usually there in around your heart area. The only problem I remember is an itchy type feeling at the pacemaker location . But I also know any issues with the pacemaker itself will be recorded on the device and the EP doctor can check that when they download the pacemaker. Let me know n if I can help further and what type you have.
Blessings