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Autoimmune encephalopathy anyone?
Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)Comment receiving replies
Funny, we have several similarities in our disease of brain "problems" (An understatement!)I had my thyroid removed several years ago, but it is under control. i had a tumor, but I do not have Hashimoto's.
I am on levothyroxine, & will be forever. While in the hospital for a critical episode of Encephalopathy,
I was given a dose of steroids which nearly killed me
Then they gave me IVIG, which set me straight! I have to take it every month till this terrible disease goes away. The drs. still have no idea of the cause of my Encephalopathy,
Good luck to all of us.
Replies to "Funny, we have several similarities in our disease of brain "problems" (An understatement!)I had my thyroid..."
My simplistic understanding of He or SREAT, or whatever they call it, is that it is autoimmune in nature. The body sees the brain as a foreign substance and reacts by attatcking it with T-cells (lymphocytes) which causes the brain to swell. Why/how the T-cells permeate the blood-brain barrier is unknown, and, as with all autoimmune diseases, what triggers the body to attack itself is complicated and has genetic causes.
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@mermaid7272 I, too, have Liss Encephalopathy. There seems to be no certain path for this stuff, but all the markers say I have it. My guess is that it is my myeloma (Gelsolin) and my LGMD2m. There are not enough of us with 2m to be sure, but it fits the known pattern. (NIK says there are Nine on earth with 2m. And there seems to be some divided opinion whether it mutates from Gelsolin or the GSN mutates from the LGMD2m. Oh, well. It seems that any who have GSN or LGMD2m are eventually diagnosed with the other. Anyone have a Ouija board? oldkarl