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DiscussionCancer: Nothing about this is normal.
Cancer: Managing Symptoms | Last Active: Feb 13, 2022 | Replies (26)Comment receiving replies
Replies to "Talk to your Medical team about every issue.... food, talk to a dietician; emotional, ask for..."
@bb21, thanks for the extensive comments. You sound like you are doing well and have found things that are helpful. I am very happy for you. Everyone's case is different and a lot has to do with how many treatments, types of treatment, surgeries and of course the virulence of the disease. We have 3 oncologists, 3 nutritionists, 2 therapists, 2 support groups etc. But my wife just hasn't gotten any breaks. We've tried supplements, protein ingredients, minerals, prescriptions, everything that has been recommended and most don't get the expected result. My wife went from healthy and able to weight train 3 times a week, bike 20 miles or more a couple times a week to barely strong enough to walk from one end of the house to the other. After her first 9 folfirinox with oxalyplaten treatments she didn't even look like a cancer patient. Even after her distal and more she still looked well. She went from 9 months of NED with low CA19-9 and no visible tumor to having a golf ball sized recurrance that was non-existent in a scan from 6 weeks prior. So back into treatment after more surgery. She had 18 GAC treatments and we were told it was ok to skip a treatment so she could recuperate an extra week and her CA19-9 tripled. Now she's on Onivyde every two weeks and it is rough. Believe me, i cheer her on every day and I still believe that she will be the one who makes it into remission. I don't know your background but I was a lifelong competitor... you name it sports or business and have always led by the philosophy that I'd never ask a teammate to do anything that I wouldn't do myself. My wife gets no breaks in this battle so neither do I. Breaks are a luxury we don't have. BTW, my wife is on other pancan discussion groups and I don't go on the ones shes on and she doesn't go on the ones that I'm on. Despite everything, my wife is still the sweetest, nicest person you would ever meet. Thanks for your concern and prayers.