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Autoimmune encephalopathy anyone?

Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)

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@drdash

I was on oral meds methylprednisone and depakene for a few years. I was started on levothyroxine after my diagnosis and contunue taking it. I have Hashimoto's thyoditis so I will take the thyroid med for life. A few years after being taken off the steroid for HE I felt I was relapsing. My doctor didn't think so, but put me back on methylprednisone for a short while.
When I hadn't had any seizures and my brain scans appeared normal I was taken off Depakene. It has been over 10 years since my original diagnosis and I feel that I have no side effects .......thanks in good part to a quick diagnosis and treatment. My former neurologist told me he was certain that I would not have any relspses .......ever.

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Replies to "I was on oral meds methylprednisone and depakene for a few years. I was started on..."

Funny, we have several similarities in our disease of brain "problems" (An understatement!)I had my thyroid removed several years ago, but it is under control. i had a tumor, but I do not have Hashimoto's.
I am on levothyroxine, & will be forever. While in the hospital for a critical episode of Encephalopathy,
I was given a dose of steroids which nearly killed me
Then they gave me IVIG, which set me straight! I have to take it every month till this terrible disease goes away. The drs. still have no idea of the cause of my Encephalopathy,
Good luck to all of us.