Hi Abbey @abbeyc, You will notice that we merged your discussion with a similar discussion on the same topic so that could meet @priscillat and share experiences and other information. Losing muscle mass is also one of my concerns but for me I think it's due to my age and other factors - I'm 78 and am not quite as active as you two. I do have a bluetooth scale that shows body fat, muscle mass, water weight and BMI. The only thing consistent for me is the muscle mass at 25% which is low 🙁 I know I need to do more work with weights but it's a little out of my league so I keep riding my cross fit trainer exercise bike to help with strength and cardio but it's not helping with the muscle mass.

I did post an article above to 3 Strategies for Coping with Polymyalgia Rheumatica (PMR) but I'm guessing you might being doing all the right things from and exercise perspective. Have you done any weight lifting or training to see if that helps or possibly talked with your doctor for suggestions?

It has affected my muscle mass, and I found that the treatment prednisone has thinned my skin and made me tired so I cannot do the exercise that I use too, thus losing mu muscle tone/mass. If you are still taking large doses of prednisone do not do heavy lifting until you get down, so you do not tear a tendon, is the instruction from my physical therapist. Sadly it has forever changed us,
and I don't think that we can go back. I have been taking collogen for a year with no noticeable results. It has also affected my lungs so that I look and sound like I have run a long way when I have only gone up 5 steps. But all tests by MD's say that my lungs are fine. ? I can no longer sing and hold notes like a good soprano? I hope this will change when I am of the meds and in remission.

Same here.Have had it for 5 months and lost a third of my muscle mass in arms.Was in excellent shape until now.