Connect
← Return to Recurrent urinary tract infections (UTI)
Discussion
Recurrent urinary tract infections (UTI)
Kidney & Bladder | Last Active: May 21 9:35am | Replies (143)Comment receiving replies
I have for years years chronic UTIS. The UTIS are 95% rare bacteria. My primary doctor and Uro Doctor take urine tests, give me antibiotic and most time when culture comes back with wrong antibiotic treatment and I start over with another medicine. I had 4 utis last year starting in May and then every other month another uti through November 2021. I have an unobstructed 3mm kidney stone and read an medical article that a woman had a 4mm and chronic Utis. Her Doc ignored her pleas to remove it just in case it may tbe what is causes her utis. Finally he gave in and did it and her utis stopped. Conclusion, kidney stone was infected and the uti meds were not killing that infection. Doctor said, he will listen more closely when his patients bring information to him pertaining to their health issue. I approached my doctor and the only response was, "Do you know how small 3mm stone is"? Gave me script that may help prevent uti. Nope, waste of time. I want to go to the Mayo and get help. I'm at my wits end. Please, can anyone guide me in the right direction. Thanks Kathy.
Replies to "I have for years years chronic UTIS. The UTIS are 95% rare bacteria. My primary doctor..."
Hello @daphne52. You will notice that I have moved your post into an existing discussion on recurrent UTIs so that you may connect with members such as @fotula @nene22 @contentandwell @jakedduck1 @retiredteacher @baxtersmom who have written on this topic,
To make an appointment request, since you mentioned it, you may use this link: http://mayocl.in/1mtmR63
Do you live near one of the Mayo Clinic sites?
I am sorry you are going through this as I can relate to chronic UTIS, so I understand your frustration with Dr's. Here is my experience. I started having UTIS in my early 20's. After a few years of having several bladder infections, I asking Dr's why I was getting so many of them. Here was their responses (1) woman often get them (2) don't wear tight jeans (3) don't use colored toilet paper (yes in the 70's you could buy pastel colored TP.) We moved around a lot back then, so I saw a lot of different Dr's. After awhile a lot of antibiotics didn't work on me, except sulfa drugs and 7 days was not long enough to get rid of the infection so I had to take it for 10 days.
Fast forward to 11 years of having recurrent UTI's I finally found a "GOOD" Dr that (after only seeing him twice for a bladder infection) said "Has anyone ever tested you to see if there is a problem?) FINALLY!!!
He sent me to an urologist and he did all kinds of tests on me. It wasn't till the last test that something wrong was discovered. My ureter going from my bladder into my right kidney went straight through to the kidney. It is supposed to go through the wall of the kidney first before going into the kidney. What this did was allow urine to flow back up into the bladder which was causing my bladder infections. In the early 80's I had a ureter reimplantation done on the right kidney and that stopped the infections!!! After having so my infections for 11 years I was told my right kidney was 1/3 damaged and my left had enlarged to compensate.
I don't know what tests you have had done and I am not saying this is the cause of your infections because there can be several reasons why this is happening. My girlfriends daughter had several infections when she was younger and they discovered the reason for her infections was she had a pouch in her ureter that was collecting urine and then it would sit there stagnant till it got infected. She had surgery to fix this and she stopped having infections. I am just saying that I would be going to another urologist as there has to be something causing this to happen to you.
I wish you all the best and please let us know how your journey goes.
Maureen
Connect
Forgot to mention, today, Feb 7, 2022 I have another UTI. Kathy