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@virginiaj

I am fairly sensitive to medications and have had 3 bouts of PMR. With this latest bout, I started on 10 mg with complete resolution of symptoms. I have also learned to decrease slowly. About 2 years, I was started on 10 mg, then decreased 1 mg a month until I was down to 7 mg, then decreased more slowly. Now, 2 years later, I am on 3 mg, starting the decrease to 2 mg which I hope to get to sometime in March. The last 2 mg need to go really slow for me. The one time, I was able to get off prednisone in less than 1 year led to a reoccurrence 8 months later. The first time, I was off in 2 years and in remission for 12 years. At this point, I will focus on decreasing slowly, I am 75, active, daily walks and a zoom exercise class, plus help with grandkids. I’ve found patience to be the key.

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Replies to "I am fairly sensitive to medications and have had 3 bouts of PMR. With this latest..."

Thank you for sharing this. This sounds somewhat encouraging that you are enjoying an active life. However I was led to believe by doctors that this can resolve itself in about 2 years average time. I am since learning from this group that many have relapses or go into remission and then it comes back. So I guess it never really goes away. disturbing. I read in one of the forums that taping at 1mg per month or perhaps even better 10% (I think?) per month is the key. Good luck to you!