I was on the steroids for only a few years/ after a few months the amount was slowly lowered to a very small amount. Most people don't need the steroids that long but I kept feeling that my symptoms were returning so I continues for a while on a very low dose. Once my brain scans returned to normal I was taken off the Depakene (seizure med). I was started on levothyroxine right after my diagnosis of HE even though my thyroid results were not bad. I am now on it for life because I have Hashimoto's Thyroiditis/ or hypothyroidism. It is an autoimmune disease but I do not have a lot of problems with it. My life returned to normal soon after. I had one episode where I felt I was having a relapse. Doctor
did not think it was really that but put me back on steroids. I was off of it in few months and that was about 10 years ago.

I was on oral meds methylprednisone and depakene for a few years. I was started on levothyroxine after my diagnosis and contunue taking it. I have Hashimoto's thyoditis so I will take the thyroid med for life. A few years after being taken off the steroid for HE I felt I was relapsing. My doctor didn't think so, but put me back on methylprednisone for a short while.
When I hadn't had any seizures and my brain scans appeared normal I was taken off Depakene. It has been over 10 years since my original diagnosis and I feel that I have no side effects .......thanks in good part to a quick diagnosis and treatment. My former neurologist told me he was certain that I would not have any relspses .......ever.